(801) 334-8683
info@wiaa.org
Description
The England Grant of $2500 may be available for qualifying families.
Individualized grant funding for qualifying families may be available through our President’s Grant. Contact us for more details!
Meet handsome Jules. He was born September of 2016 and is diagnosed with the following: Genetic Metabolic Disease diagnosed at one month of age (pyruvate kinase deficiency) and severe delay in physical and social development.
When our Bulgarian staff met Jules at his orphanage, they noticed that In general, Jules does not like to be bothered or moved. He likes to stay in his crib and spends most of his time there. Periodically, they put him on a soft chair in another other room or in a pram. But he immediately begins protesting, and to calm him down, they put him back in bed. He doesn’t like to be cuddled. Both of his hands are active, and after eating he often puts his fingers in his mouth. Jules makes a lot of movements when he is awake. He moves himself in the crib and turns around. He doesn’t like to stay on his stomach much and does not lift his head.
He has no preference for the elderly or for the staff caring for him. He didn’t mind and didn’t react in any way to my touching and petting him. However, the staff said he quickly gets tired of individual attention. Jules only makes sounds when he is protesting. When he is happy or satisfied, he starts “singing” to himself…. some sounds – not syllables or words.
Jules needs a family, a lot of love, patience, personal attention and activities. The specialists need to work a lot more systematically with him. I can’t tell if it’s really because of the diagnosis that he is left on his back or just that he protests so much they quickly put him on his back. I wonder if perhaps there are other ways to position him or to attract his attention, so that he is not always left lying down.
I was also interested in the fact that he doesn’t like to be hugged or have his personal space invaded. Maybe it depends on who does it and in what way. Jules needs more stimulation, purposeful work by specialists and to be supported by a loving and caring family.
His video as of Oct 2019:
Video from August of 2023
For more information, please contact: Kathy@wiaa.org. You will be asked to complete a parent eligibility form before any file information can be released.
Please be aware that children on our waiting list may be under review by multiple families. Additionally, a child’s availability status may change on short notice. Please contact Kathy@wiaa.org for the most up-to-date status of a child.
Disclaimer:
WIA is not responsible for the medical information summarized here. Medical information sent by other countries may be inaccurate or incomplete. Prospective Adoptive Parents reserve the right to have medical information evaluated by a medical professional in the United States.
